![]() ![]() State by state, IDF worked with local organizations, legislators and statewide public health officials to break down the barriers and have SCID added to the newborn screening panel in each state. Other states soon began following Wisconsin's lead. In 2010, the Department of Health and Human Services (HHS) announced the addition of SCID to the recommended uniform screening. ![]() Wisconsin was the first state to test for SCID beginning in 2008. That is the most striking and important element of this achievement.” The second group that comes to mind is the young SCID people with SCID, many of them are now children as old at 8 or 10 years of age, who are alive and thriving because screening was brought to their state. We are grateful for their dedication and hard work. “The first is the families affected by SCID, medical professionals, legislators, public health professionals, and nonprofit organizations who all worked together to achieve a goal that seemed nearly impossible a decade ago. Boyle, President & CEO of the Immune Deficiency Foundation. “Reflecting on this significant milestone of bringing SCID screening to all 50 states, there are two groups of people that come to mind,” said John G. Louisiana was the 50th state to officially screening newborns for SCID beginning this December.įor more than 10 years, the Immune Deficiency Foundation (IDF), along with dedicated volunteers and partner organizations, have worked to implement universal screening for SCID in the U.S., making sure all babies have a chance at a healthy, happy life. (Towson, MD) – Beginning Decemall children born in the United States will be tested for Severe Combined Immunodeficiency (SCID), a life-threatening disorder and one of the most severe forms of primary immunodeficiency diseases (PI). Decade-long campaign by the Immune Deficiency Foundation and numerous partners realizes goal of testing every child in the United States for this life-threatening diseaseĬhallenging work remains to address gaps in testing and care for people with SCID ![]()
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